“I think you might be losing sight of the fact that he has an autism spectrum diagnosis. That’s not going away. We need to talk about adjusting your expectations.” This is what the behavioral pediatrician told me in our appointment last week. She said it in response to me telling her all the things we… Continue reading When My Expectations Don’t Match My Reality
I hung up the phone and started to cry. I was alone in my room so that I could speak to the doctor’s office privately. I could hear my son starting to meltdown and my husband trying to help him in the next room. But I couldn’t move. I could not open that bedroom door and… Continue reading Neurological Evaluations and Diagnosis: What I Wish Someone Had Told Me
When I was in high school, I learned about Elisabeth Kubler-Ross’s Five Stages of Grief (the stages we go through when we are processing a significant loss or change). It was part of an assignment for a speech I was working on in debate class. Denial, Anger, Bargaining, Depression, and Acceptance I still have them… Continue reading Grieving My Child’s Diagnosis
You might be the worst mom ever. How could you let him play Minecraft that long? Did you even think about what vegetable to serve for dinner tonight? He can’t have that much sugar. Why did you say yes to the candy bar? You’re choosing easy over what is right, again. Why didn’t you sign… Continue reading Giving Ourselves Grace
I leaned over the kitchen counter, my head in my hands, and tried to take a few deep breaths. The house was a disaster, I hadn’t finished reading lessons my youngest in three days, I was still in my pj’s at 11AM, and my eleven year old was melting down over not being able to buy… Continue reading Lies I Believe About Being A “Special Needs Mom”
He threw the book and stomped off to his room. “Don’t you understand?” he yelled, clearly frustrated. “I have dys-A-lexia!” As he slammed the door, I tried to sort through all my reactions – smiling because of the way he pronounced dyslexia, bitter because he threw the book and we have been trying to help… Continue reading Just Because It’s Difficult, Doesn’t Mean You are Doing it Wrong
This post was originally published on Not The Former Things in 2014. After reading two books last week, my sweet son was thrilled. I was thrilled. We all were thrilled. But this week, basic words are a struggle again. He sees the words. He knows he used to know them. But his brain just can’t… Continue reading Momma, Why Can’t I Read?