A few weeks ago, I shared that we were getting a psychiatric service dog for my 11-year-old son. For the past few months, I have openly shared the different therapies and interventions we employ for both my sweet boys. For three years, I have tried to explain, as best I can while still protecting some shred… Continue reading Does My Child Really Need These Treatments, Therapies and Interventions?
“I think you might be losing sight of the fact that he has an autism spectrum diagnosis. That’s not going away. We need to talk about adjusting your expectations.” This is what the behavioral pediatrician told me in our appointment last week. She said it in response to me telling her all the things we… Continue reading When My Expectations Don’t Match My Reality
The day I ordered my son’s wheelchair was not a good one. Just pressing the “ship now” button made my heart hurt. After years of autism therapies and anxiety medications. After years of doctor’s appointments and educational evaluations. After years of learning everything possible about his sensory system and urgent need for tactile input. After… Continue reading Seen and Unseen Disabilities (what I learned when my son used a wheelchair)
I hung up the phone and started to cry. I was alone in my room so that I could speak to the doctor’s office privately. I could hear my son starting to meltdown and my husband trying to help him in the next room. But I couldn’t move. I could not open that bedroom door and… Continue reading Neurological Evaluations and Diagnosis: What I Wish Someone Had Told Me
I have been scratched, spat on, threatened, punched and called names. There are holes in the walls, windows that have been broken, iPads that will never be the same and stains on the ceiling that will not come out no matter how hard I scrub. Our school day often involves more than one book or… Continue reading Parenting An Explosive Child
When I was in high school, I learned about Elisabeth Kubler-Ross’s Five Stages of Grief (the stages we go through when we are processing a significant loss or change). It was part of an assignment for a speech I was working on in debate class. Denial, Anger, Bargaining, Depression, and Acceptance I still have them… Continue reading Grieving My Child’s Diagnosis
My child ate kleenex in his therapy session last week. He nonchalantly picked up the box, pulled out a few pieces and started taking bites like it was a turkey sandwich. When he was done, he broke the box itself in half, put it on his head like a hat, and got back to coloring… Continue reading The Hardest Part Of Homeschooling My Children With Special Needs