Autism · Grace · Parenting

When My Expectations Don’t Match My Reality

“I think you might be losing sight of the fact that he has an autism spectrum diagnosis. That’s not going away. We need to talk about adjusting your expectations.” This is what the behavioral pediatrician told me in our appointment last week. She said it in response to me telling her all the things we… Continue reading When My Expectations Don’t Match My Reality

Autism · Chronic Illness · Lupus

Seen and Unseen Disabilities (what I learned when my son used a wheelchair)

The day I ordered my son’s wheelchair was not a good one. Just pressing the “ship now” button made my heart hurt. After years of autism therapies and anxiety medications. After years of doctor’s appointments and educational evaluations. After years of learning everything possible about his sensory system and urgent need for tactile input. After… Continue reading Seen and Unseen Disabilities (what I learned when my son used a wheelchair)

Autism · Parenting · Sensory Processing Disorder

Neurological Evaluations and Diagnosis: What I Wish Someone Had Told Me

I hung up the phone and started to cry. I was alone in my room so that I could speak to the doctor’s office privately. I could hear my son starting to meltdown and my husband trying to help him in the next room. But I couldn’t move. I could not open that bedroom door and… Continue reading Neurological Evaluations and Diagnosis: What I Wish Someone Had Told Me

ADHD · Anxiety · Autism · The Explosive Child

Parenting An Explosive Child

I have been scratched, spat on, threatened, punched and called names. There are holes in the walls, windows that have been broken, iPads that will never be the same and stains on the ceiling that will not come out no matter how hard I scrub. Our school day often involves more than one book or… Continue reading Parenting An Explosive Child

Autism · Grief · Parenting

Grieving My Child’s Diagnosis

When I was in high school, I learned about Elisabeth Kubler-Ross’s Five Stages of Grief (the stages we go through when we are processing a significant loss or change). It was part of an assignment for a speech I was working on in debate class. Denial, Anger, Bargaining, Depression, and Acceptance I still have them… Continue reading Grieving My Child’s Diagnosis

ADHD · Autism · Homeschooling · Learning Differences

The Hardest Part Of Homeschooling My Children With Special Needs

My child ate kleenex in his therapy session last week. He nonchalantly picked up the box, pulled out a few pieces and started taking bites like it was a turkey sandwich. When he was done, he broke the box itself in half, put it on his head like a hat, and got back to coloring… Continue reading The Hardest Part Of Homeschooling My Children With Special Needs

Autism · Sensory Processing Disorder

Sometimes The Basics Are The Most Difficult

My son showed me exactly how he planned to install a CPU into his computer yesterday. (If you don’t know what that is, don’t worry. You are in good company. I listen to my son tell me all about computer parts for most of the day, every day, and I am still not 100% sure… Continue reading Sometimes The Basics Are The Most Difficult