Things Doctors Just Shouldn’t Say To A Special Needs Mom

"Where do all these diagnoses come from? Are your children adopted?" I hung up the phone with the doctor a few minutes later and thought, "Well, add that to the list of awkward moments as a mom of children with special needs." There have been so many questions and comments over the years that have floored me. From professionals. From folks who deal with...Read More

To My Son’s Doctor

I hung up the phone with tears in my eyes. The office had not even sent the paperwork yet. Two weeks...wasted. Two weeks of my son being in increasing pain, complete overload, and struggling to participate in everyday life. Two weeks of waiting by the phone for the specialist to call and schedule an appointment. Two weeks...gone. Why? According to the gal on the...Read More

For The Waiting Room Mom

A sweet friend texted me last week from a waiting room. Her son was in the room next door, undergoing additional neuropsychological evaluations. She said she knew I would understand. The waiting. The mounting fear. The worry. The silence. The beige decor. The straining to hear what was being said on the other side of the door. The not wanting to hear what was being...Read More

Misdiagnosis – When Doctors Don’t Have Answers

The last six months have been a haze of doctors' offices, medications, meltdowns and unexplained illnesses for my youngest son. He has received several different, significant diagnoses in this time frame. He has been treated according to the standard protocol for each of these diagnoses. Nothing has worked. As a result, after a very serious reaction to medication and a week-long hospital stay, every...Read More

Letting Go Is Hard To Do

"I'm stuck, Mommy!" My youngest looked down at me from the top of the tree, paralyzed with fear, clinging to the one branch he was sure would hold him. "Honey, if you got up there, you can get back down," I said. "No," he cried. "You don't understand. I can't let go. I can't do it. I'm stuck." For almost twenty minutes, this continued....Read More