“I think you might be losing sight of the fact that he has an autism spectrum diagnosis. That’s not going away. We need to talk about adjusting your expectations.” This is what the behavioral pediatrician told me in our appointment last week. She said it in response to me telling her all the things we… Continue reading When My Expectations Don’t Match My Reality
I hung up the phone with tears in my eyes. The office had not even sent the paperwork yet. Two weeks…wasted. Two weeks of my son being in increasing pain, complete overload, and struggling to participate in everyday life. Two weeks of waiting by the phone for the specialist to call and schedule an appointment.… Continue reading To My Son’s Doctor
I hung up the phone and started to cry. I was alone in my room so that I could speak to the doctor’s office privately. I could hear my son starting to meltdown and my husband trying to help him in the next room. But I couldn’t move. I could not open that bedroom door and… Continue reading Neurological Evaluations and Diagnosis: What I Wish Someone Had Told Me
When my son kicked the windshield, I didn’t think it would break. I was wrong. Apparently, the force of losing all rational thought and ability was enough to crack it from end to end. He was crying, flailing and screaming at me. “I can’t do it. Mommmmeeeeeeeee. I can’t. I can’t go in.” We were… Continue reading Why Is My Child So Explosive?
There are eleven separate chronic diagnoses between my two children. Seven times I have sat in a beige room on a beige couch and heard a doctor say the words I knew were coming, but still didn’t want to hear. Your child has… Autism Bipolar Disorder, Type 1 Anxiety Disorder ADHD Sensory Processing Disorder Lupus… Continue reading 10 Must-Read Books For Parenting A Child With Special Needs
When I was in high school, I learned about Elisabeth Kubler-Ross’s Five Stages of Grief (the stages we go through when we are processing a significant loss or change). It was part of an assignment for a speech I was working on in debate class. Denial, Anger, Bargaining, Depression, and Acceptance I still have them… Continue reading Grieving My Child’s Diagnosis
I was chatting with a younger momma recently who asked me to share some tips and tricks for motherhood. She said she thought our life, and all it’s crazy, might have taught me a few things that she could apply in her life as well (with or without special needs). She’s right. Most of the… Continue reading What Being A ‘Special Needs’ Mom Has Taught Me About Just Plain Being A Mom