When My Expectations Don’t Match My Reality

"I think you might be losing sight of the fact that he has an autism spectrum diagnosis. That's not going away. We need to talk about adjusting your expectations." This is what the behavioral pediatrician told me in our appointment last week. She said it in response to me telling her all the things we were "working on" and all the things that were...Read More

To My Son’s Doctor

I hung up the phone with tears in my eyes. The office had not even sent the paperwork yet. Two weeks...wasted. Two weeks of my son being in increasing pain, complete overload, and struggling to participate in everyday life. Two weeks of waiting by the phone for the specialist to call and schedule an appointment. Two weeks...gone. Why? According to the gal on the...Read More

Neurological Evaluations and Diagnosis: What I Wish Someone Had Told Me

I hung up the phone and started to cry. I was alone in my room so that I could speak to the doctor's office privately. I could hear my son starting to meltdown and my husband trying to help him in the next room. But I couldn't move. I could not open that bedroom door and go back to all the crazy. Not yet. The...Read More