“Where do all these diagnoses come from? Are your children adopted?” I hung up the phone with the doctor a few minutes later and thought, “Well, add that to the list of awkward moments as a mom of children with special needs.” There have been so many questions and comments over the years that have… Continue reading Things Doctors Just Shouldn’t Say To A Special Needs Mom
“I think you might be losing sight of the fact that he has an autism spectrum diagnosis. That’s not going away. We need to talk about adjusting your expectations.” This is what the behavioral pediatrician told me in our appointment last week. She said it in response to me telling her all the things we… Continue reading When My Expectations Don’t Match My Reality
I hung up the phone with tears in my eyes. The office had not even sent the paperwork yet. Two weeks…wasted. Two weeks of my son being in increasing pain, complete overload, and struggling to participate in everyday life. Two weeks of waiting by the phone for the specialist to call and schedule an appointment.… Continue reading To My Son’s Doctor
“I am going to write a doctor’s note for you stating that you have a serious medical condition. Perhaps this will help you get respite care from someone.” After months of crippling headaches, a stabbing sensation behind my right eye and shooting pains down the right side of my body, I finally went to see… Continue reading The Best Thing You Can Do To Help An Explosive Child
The day I ordered my son’s wheelchair was not a good one. Just pressing the “ship now” button made my heart hurt. After years of autism therapies and anxiety medications. After years of doctor’s appointments and educational evaluations. After years of learning everything possible about his sensory system and urgent need for tactile input. After… Continue reading Seen and Unseen Disabilities (what I learned when my son used a wheelchair)
“You baby him. He’s almost eleven years old and you are still helping him get his socks on straight.” “You can’t keep treating him like a baby. He is old enough to sleep through the night. You need some tough love here.” “You are still helping him tie his shoes? Are you kidding me? How… Continue reading Am I Babying My Son?
I hung up the phone and started to cry. I was alone in my room so that I could speak to the doctor’s office privately. I could hear my son starting to meltdown and my husband trying to help him in the next room. But I couldn’t move. I could not open that bedroom door and… Continue reading Neurological Evaluations and Diagnosis: What I Wish Someone Had Told Me