Things Doctors Just Shouldn’t Say To A Special Needs Mom

"Where do all these diagnoses come from? Are your children adopted?" I hung up the phone with the doctor a few minutes later and thought, "Well, add that to the list of awkward moments as a mom of children with special needs." There have been so many questions and comments over the years that have floored me. From professionals. From folks who deal with...Read More

When My Expectations Don’t Match My Reality

"I think you might be losing sight of the fact that he has an autism spectrum diagnosis. That's not going away. We need to talk about adjusting your expectations." This is what the behavioral pediatrician told me in our appointment last week. She said it in response to me telling her all the things we were "working on" and all the things that were...Read More

To My Son’s Doctor

I hung up the phone with tears in my eyes. The office had not even sent the paperwork yet. Two weeks...wasted. Two weeks of my son being in increasing pain, complete overload, and struggling to participate in everyday life. Two weeks of waiting by the phone for the specialist to call and schedule an appointment. Two weeks...gone. Why? According to the gal on the...Read More

The Best Thing You Can Do To Help An Explosive Child

"I am going to write a doctor's note for you stating that you have a serious medical condition. Perhaps this will help you get respite care from someone." After months of crippling headaches, a stabbing sensation behind my right eye and shooting pains down the right side of my body, I finally went to see a neurologist. Three MRI's and two blood tests later,...Read More

Seen and Unseen Disabilities (what I learned when my son used a wheelchair)

The day I ordered my son's wheelchair was not a good one. Just pressing the "ship now" button made my heart hurt. After years of autism therapies and anxiety medications. After years of doctor's appointments and educational evaluations. After years of learning everything possible about his sensory system and urgent need for tactile input. After what felt like years of so much, he was...Read More