Autism · Chronic Illness · Lupus

Seen and Unseen Disabilities (what I learned when my son used a wheelchair)

The day I ordered my son’s wheelchair was not a good one. Just pressing the “ship now” button made my heart hurt. After years of autism therapies and anxiety medications. After years of doctor’s appointments and educational evaluations. After years of learning everything possible about his sensory system and urgent need for tactile input. After… Continue reading Seen and Unseen Disabilities (what I learned when my son used a wheelchair)

Chronic Illness · Friendships

How To Help When A Friend’s Child Has Been Hospitalized

My son has been in the hospital for three days now. I have cried more than I thought possible. I have prayed more than I thought possible. I have worried more than I thought possible. And I have found more encouragement and hope in the midst of this, than I ever thought possible. Right now,… Continue reading How To Help When A Friend’s Child Has Been Hospitalized

Autism · Chronic Illness · Doctors

Doctors, Therapists, and Moms of Children with Special Needs

I sat with her, desperate for information and scared of what she might say. It was two weeks before my appointment with the developmental pediatrician. Two weeks before I would hear the words ‘Autism Spectrum Disorder’ applied to my son. Two weeks before our lives changed. I had asked her to meet me for coffee.… Continue reading Doctors, Therapists, and Moms of Children with Special Needs

Chronic Illness · Doctors · Lupus · Parenting · Survival Mode

Being A Mother Of A Chronically Ill Child

“Now, I don’t want you to worry. Not yet. These results can mean any number of things.” When the doctor starts out with “I don’t want you to worry,” the first thing you do is worry. It has been a year since we got back test results that revealed my son had something wrong –… Continue reading Being A Mother Of A Chronically Ill Child