When You Question My Decision To Medicate My Child

When You Question My Decision To Medicate My Child #mentalillness #childhoodanxiety #specialneeds #specialneedsmom

It happened again last month.

We were in the ER. My son was in intense pain and vomiting non-stop.

As we waited for the blood test results that would indicate my son was suffering from acute pancreatitis, the doctor, who had just met him, questioned my son’s current medications.

“I am not sure he should be on so many different medications at such a young age.”

I looked her straight in the eye and said, “I wish he didn’t have to be. I have his regular doctor’s information if you would like to call him for a consult. He can explain his treatment plan and the severity of my son’s mental illness.”

Just a year ago, this question would’ve caused me so much confusion, shame and grief.

But a year ago, my son wasn’t begging to die everyday.

He hadn’t spent months in the throes of mania and darkest valleys of depression.

A year ago, I hadn’t spent every single day trying to keep him from harming himself and giving him hope for the future.

I hadn’t been punched in the face and been called every name in the book by my own little baby.

A year ago, I too asked the same question.

Should I really be medicating him?

When You Question My Decision To Medicate My Child #mentalillness #childhoodanxiety #specialneeds #specialneedsmom

My oldest son started a medication for anxiety six years ago and it completely changed his life.

Within a few months, he was happier, more comfortable in his own skin and better able to manage stress.

I think about how worried I was about taking that first step, so many years ago, and I am immensely grateful that I decided to try.

My youngest however, does not have the same success story.

He has been on almost every available medication for his diagnosis and age.

To date, we have tried nine different medications and are working on our tenth. All of them have worked, really well, almost miraculously well for a period of time. Then, his body adjusts to the dose and it’s effectiveness fades. Or he develops side effects that are life threatening. Or he ends up in the hospital with acute pancreatitis.

It sounds terrifying, and it is.

Disclaimer: While this is true for my child, this may not be the case for yours or anyone else’s. These are my personal reasons for making this decision. I would never consider questioning another mom about her decision not to medicate. I trust her judgement – immensely. This is about asking the world to trust mine as well.

When You Question My Decision To Medicate My Son

Making the decision to medicate my child was not an easy one.

I am well aware of the brain chemistry and long-term implications of giving a young child psychotropic medications.

At one point last year, because of my own inner turmoil, and the well-meaning questioning from those around me (What about a totally organic diet? Have you thought about supplements instead? What about essential oils?) we began to titrate my son off his medicines.

It led to one of the most dangerous episodes my son has ever experienced.

This is not easy. It continues to be a difficult decision to give my son his medications everyday.

But it is a necessary one.

Accepting the fact that my son’s brain needs biochemical support in order to function has become as obvious a need as the cast my husband is wearing for his fractured ankle right now.

Consider the statistics.

40% of individuals with bipolar disorder will attempt suicide during their lives, and 20% will succeed .

Suicide is more common in bipolar disorder than in unipolar major depression, panic disorder, or even schizophrenia.

Life expectancy for those with bipolar disorder is almost ten years less than the average – the same as habitual smoking.

My son suffers from a serious, life threatening, chronic illness. 

Questioning whether or not he should receive pharmaceutical treatment, and instead suggesting we diffuse lavender and becoming vegan shows a significant lack of knowledge about the severity of my son’s situation.

While essential oils and careful diet are actually quite helpful, they are simply not enough for my child.

The truth is, even the pharmaceutical treatment my son is receiving is not enough. It’s not fully effective. It’s not a great option. These meds are a nightmare and NO ONE would ever want their twelve-year-old subjected to them.

But they work. They work with varying effectiveness, but they work.

My son’s medications give him relief. They allow him to experience happiness, even if fleeting. They clear the fog and allow him to engage in the world.

They bring him back to us and give us good days with good memories.

His medicines give us the chance to tell him we love him no matter what, when he is actually able to hear us.

Perhaps, in the future, we will know more. Perhaps, in the future, the term “mental illness” will simply be referred to as an illness. Perhaps, in the future, we will have greater access to medicines, therapies and educational choices that truly treat and comfort a child suffering in the agony and torment of mental illness.

But my son is in pain today.

His medications, and all the prayers I can possibly utter and ask for, are all we’ve got.

 

For more support:

On Denial, Hope and Parenting A Child With Special Needs

When The Child Who Needs Structure Fights It The Most

My Son Is A Child, Not A Bipolar Diagnosis

6 thoughts on “When You Question My Decision To Medicate My Child

  1. First – I stopped immediately and said a prayer for you and your family. God allows a LOT of tests in this life – and though in the big picture of eternity the time here is very small, it sure doesn’t make it easier. I sure hope by the time you read this, you are coming out of your current storm and have a few blue sky days.
    Okay, about your husband…, why is his ankle in a cast (I hope there is a good story there 🙂 ).
    With that out of the way, I so appreciate your medication story and I was cheering you on as you confronted the ER doctor. Authority figures like MDs sometimes lose perspective and feel empowered to make random statements like that. I hope you were able to provide some “food for thought” – You go girl!
    We are on to round two of child raising. We are now raising our bi-polar child’s child (grandson our son’s son). As you can imagine, the situation is even more amplified in bi-polar V2.0. Our struggle is that, like you, we tried so many medicines on our son (bi-polar V1.0) with “irrationally dramatic, negative results” that we are exceptionally gun shy of trying that route again. However, there is clearly different wiring in both our son and our grandson’s heads. Diet, aromas, schedules…, they all help – but they are only pieces. I get so excited when I hear someone say they’ve found success – especially success earned through perseverance. Good for you! For folks like us, a regular serving of that gives us hope.
    Last thing (this is no longer a comment its an epistle) – I am a Father, “Papa”. I enjoy your posts too. Maybe you could acknowledge me, or other guys, when you write. I’d be cool with “all you moms (and Jeff)”. jk… 🙂

    1. Oh my goodness, Jeff! You made my day with your wisdom, kindness and humor. I love that you are here and watch out – I just might say moms and Jeff in some post in the future. 🙂
      I usually refer to moms only mostly because I feel like that is the only role I am really qualified to speak into. That being said, I am so glad you appreciate the perspective and can identify with it too.

      I am sure my husband wishes it was a great story. The truth is, he stepped in a hole at the park.

      Praying for you and yours (especially as you tackle V2.0!)
      With love,
      Shawna

  2. I support you and your decision. You are doing the best you can with the information you have.
    You are a wonderful mother.

  3. Prayers for your family. I have watched my niece struggle with her bipolar depression, she was diagnosed young. The meds and a good therapist can help tremendously. It’s hard.

Leave a Reply

Your email address will not be published. Required fields are marked *